Your emotional well being is vital
We know that living with and managing CGD or being an X-linked carrier can have an impact on your wellbeing and mental health.
Many people will need emotional support or professional psychological counselling at some stage.
This is especially true in regard to the current outbreak of the Coronavirus (COVIC-19): it is an uncertain time for us all, leading to feelings of anxiety, feeling low, stressed or confused.
If you are living with a chronic illness such as CGD those feelings can be exacerbated, especially for those that are needing to self-isolate.
It is always important to discuss any emotional difficulties with your GP as they will be aware of local services.
In addition to NHS services there are organisations that can either advise about or directly provide emotional support. It is vital to look after our mental health in these uncertain times - be it mindfulness, exercise, meditation, yoga or talking therapies we hope you can find some support from the following:
Stay connected. If you are self-isolating, carrying out shielding in your household or practising physical distancing, technology allows you to remain in touch with your loved ones and your community. Apps such as Zoom and Houseparty are face-to-face social networks that mean you can spend time with the people you care about in a shared virtual space. There are also lots of activities that can be enjoyed online – Zumba classes, book clubs, quiz groups and choirs to name a few.
Develop a routine. Come up with a routine that will work for you and those around you. Jot down all your usual daily activities (such as taking your medication, exercising and preparing meals) and any new responsibilities placed on you (such as home-schooling your children or working from home). Weave in tasks that will give you a sense of achievement, and set aside time to connect with others and do the things you enjoy.
Continue to maintain a healthy lifestyle. Try to follow a lifestyle that maximises your health. This means eating a balanced diet, getting a good night’s sleep and taking regular exercise. Be mindful of slipping into unhealthy behaviour as a way of coping with the situation. Avoid drinking too much alcohol, smoking or using recreational drugs.
Limit your exposure to the news. While it is important to stay informed of what is happening, make sure you access information from reputable sources only (e.g. Gov.uk, Health Protection Scotland, Public Health Wales and PID UK). Limit the amount of time you spend watching the news and avoid reading or watching news reports close to bedtime. Think about how you talk to your children about the situation. See our list of resources below.
Seek professional support (if needed). Talk to trusted family members and friends about your worries and concerns. Professional support is also available online – see below. If you are worried about your own emotional health, or that of a loved one, you can call the Samaritans, for free, on 116 123, talk to your GP, contact your local psychology service or, in an emergency, attend your local accident and emergency department.
Resources for adults
World Health Organization: Advice for coping with stress during the coronavirus outbreak
Mind: Coronavirus and your wellbeing
Mental Health Foundation: Looking after your mental health during the coronavirus outbreak
Relate: Maintaining healthy relationships during the coronavirus outbreak
Free online mindfulness sessions:
Resources for carers of children and young people
World Health Organization: Helping children cope with stress during the coronavirus outbreak
Anna Freud National Centre for Children and Families: Supporting young people’s mental health during periods of disruption
Emerging minds: Supporting children and young people with worries about COVID-19
Emerging minds: How can we best support children and young people with their worries and anxieties?
Emerging minds: How can we best support children and young people with their worries and anxieties? – Recommended resources
Information updated 7.4.2020