Become a member


In this policy “Chronic Granulomatous Disorder Society (CGD Society)” means the registered charity “Chronic Granulomatous Disorder Society”, the registered trademark owner of CGD Society.

Chronic Granulomatous Disorder Society is committed to protecting the privacy of all visitors to the CGD Society website and the confidentiality of the personal information which our users provide to us by any means.

This policy tells you how we collect and use the information you give us.
1. Personal Information
2. Our Use of Your Personal Information
3. Acknowledgement
4. Updating, Correcting and Deleting Personal Information
5. Cookies
6. Children
7. Security
8. Email
9. Sensitive Personal Data
10. Website Links
11. Our Contact Details

1. Personal Information

In some areas of our website, we ask you to provide personal information that will enable us to enhance your site visit or contact you after your visit.  Examples of your personal information include your name, postal address, phone number and email address.

We may ask for information in a number of different circumstances, e.g. when you subscribe to our newsletters, provide feedback to us, complete a registration form, make a donation, purchase merchandise or complete any online survey we may publish from time to time.

2. Our Use of Your Personal Information

The processing of your information by the CGD Society and its data processors will be regulated by UK data protection law and the General Data Protection Regulation.

We use the information we collect about you to help us understand more about how this site is used and to enable us to send you communications about the CGD Society that may be of interest to you, either electronically or otherwise.

We may process your data ourselves, or we may use a third party to carry out certain processes on our behalf, e.g. to email our newsletter to members.

In accordance with your preferences, we may use the contact details we collect to ask for your feedback, keep you informed of news and developments which may be of interest to you and to notify you occasionally about important changes or developments to the website or our work.

3. Acknowledgement

This policy may be subject to updates and changes. Please revisit it each time you consider giving personal information. By using this website you acknowledge that you have read the terms of this privacy policy and that you consent to the collection of information from you and use of it as described in this policy.

4. Updating, Correcting and Deleting Personal Information

If you would like us to correct or update your personal details, delete any inaccuracies or change your preferences for the ways we communicate with you, please email or write to us at the address indicated at section 11 (Our Contact Details) or simply email us at 

If you wish to withdraw your consent for us to contact you then please email us at and we will remove your membership and delete your data.

5. Cookies

A cookie is a small piece of information sent by a web server to a web browser, which enables the server to collect information from the browser. Find out more about the use of cookies at

We use cookies to identify you when you visit this website and to keep track of your browsing patterns.  By showing how and when visitors use our site, cookies help us to identify which areas are popular and which are not, and to understand and improve this website.

You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. This may prevent you from taking full advantage of our website.

For further details on our cookie policy and the cookies we store please refer to our our cookie policy

6. Children

The protection of children is very important to us.  If you are under 18, please do not provide us with any personal information.

Children should always ask a parent or guardian for permission before sending personal information to anyone online.

If you provide us information about a child in your role as a parent or guardian, we will not contact them directly.

7. Security

We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online and by other means.

All data processors, including third parties, operate under strict agreements based on the same privacy policy that we operate. We will never sell your data or allow third parties to use your data in a way that has not been agreed.

8. Email

We cannot guarantee the confidentiality of any messages transmitted between you and us via email as these are potentially accessible by the public.  We will not be liable to you or anyone else for any loss in connection with any email message sent by you to us or by us to you.

9. Sensitive Personal Data

When using or subscribing to our services, you may choose to provide us with information which is defined as Sensitive Personal Data in the Data Protection Act 2018. Examples of Sensitive Personal Data include details of your ethnicity or state of health. As with all of the personal information which you provide to us, we shall use and store this information carefully in accordance with this privacy policy.

10. Website Links

This website may contain links to other websites which are outside our control and are not covered by this privacy policy. If you access other sites using links provided on this site, the operators of these sites may collect information from you which will be used by them in accordance with their privacy policy, which will differ from ours. The operators of these sites may send their own cookies to users, collect data or solicit personal information. You should read the privacy policy of any site on which you are sharing personal information.

11. Our Contact Details

All comments queries and requests relating to our use of your information are welcomed and should be addressed to:

CGD Society
PO Box 454

Tel: 0800 987 8988

This privacy policy is governed by the laws of England and the General Data Protection Regulation.

The data controller of your data under the Data Protection Act 2018 is the Chronic Granulomatous Disorder Society.

Information on the Data Protection Act 2018 is also available on the Information Commissioner’s website at