Become a member


Volunteer with us and make a difference


Real people making a real difference

Looking to broaden your horizons? Keen to find a way to give back to the rare disease community. Hoping to build your experience and develop transferable skills? Or maybe you or your family have received support from us in the past and you would like to support others. If yes, then doing a volunteering placement at the CGD Society could be exactly what you are looking for.

The CGD Society welcomes volunteers with a variety of skills and experience that will benefit our charity. As a volunteer, we really do value your contribution and view this as an essential ingredient to the support we provide the CGD community around the world.

We offer short and long-term opportunities to support us with activities ranging from fundraising, membership engagement, website development and grant writing. Support can be tailored to suit your skill set and interests. Please find below details of the roles we are particularly interested in at the moment, however, please do not hesitate to get in touch if you’d like to explore a different area.

Current volunteering roles

Find our current volunteering roles and see if you can help


Become a trustee

Find out about our current trustee positions and what is involved in being a trustee



All the answers to your questions about volunteering can be found here


Who are we looking for?

We are looking for enthusiastic people who are dependable, trustworthy, flexible and a great team player. We need people who are empathic and passionate about our cause and want to make a real difference to those affected by CGD.

The CGD Society positively welcomes, and seeks to ensure we achieve, diversity amongst our volunteers. We would like to encourage all groups of people to volunteer with us regardless of age, sex, religion, sexual orientation or disability. We will ensure all volunteers receive equal and fair treatment.

If either of the above volunteering posts are of interest to you or someone you know, or if you would like to discuss volunteering opportunities more generally, then please contact Claire at

Volunteers' stories

So, what is it like to Volunteer for the CGD Society?