josh stevens
Josh Stevens, Chair

Josh is a professional accountant within the charitable sector, and joined the board of the CGD Society in June 2024. With 5 years of experience working in the central finance departments of large UK-based charities, Josh is well versed in financial reporting, fundraising administration, and head office operations.  Also, as a person who lives in denim, Josh has fond memories of Jeans 4 Genes campaigns whilst at school and is keen to support the development of the charity’s fundraising activities.

maria cgd society trustee
Maria Loughenbury, Trustee

Maria joined the CGD Society board in May 2025. She is a programme manager in respiratory clinical quality improvement, with experience managing national research databases used in NHS commissioning to improve patient care.

With 15 years’ experience across medical and economic sectors, Maria has a background in plant genetics, is a certified statistician, and an accredited internal auditor.

trustee
Chikai Lai, Trustee

Chikai currently holds a director position at a pharmaceutical company. Through his work, he became aware of patient advocacy group community and its critical role in ensuring patient needs are served. He became a trustee in October 2019.

Lucie Eadon, Trustee
Lucie joined the CDG Society board in August 2026. She has a background in Patient Voice and Disability Advocacy and is a CIPD Associate Member. She is currently completing a PhD at the University of Birmingham.
 
Her work focuses on the amplification, support and celebration of the voices of those with lived experience and emphasises the importance of recognising the barriers and challenges that they face. She brings a deep knowledge of Diversity, Equality and Inclusion to the board and is keen to ensure the accessibility of all the work that the board does.