Ocean Numan, Honorary President
Ocean Numan founded the CGD Society (formerly the CGD Research Trust) in 1991 with the aim of finding a cure for the disorder that affected his son. Ocean was Chair of the Board for 12 years. Today, he lives in New Zealand and works as a marketing consultant. His son passed away in 2009 aged 29.
Geoff Creamer, Chair
Geoff’s two sons were born with X-linked CGD and one has had a successful bone marrow transplant. Geoff became a trustee in 1992, and since that time has seen the charity change from a small parent support group to being a leading source of information for those affected by CGD. He is currently the technical director of a manufacturing company.
Jane Docherty, Trustee
Jane first became aware of CGD in 2008 due to her friends son, Lake, being affected by X-linked CGD. Lake underwent successful gene therapy treatment in July 2016.
Jane became a trustee in 2018 and is a trained accountant. Jane currently owns a restaurant in Cornwall.
Davina Gray, Trustee
Davina's son Josh was diagnosed with X-linked CGD in 1993. He is now 27 years old. Davina became a trustee in 2018 and is currently working as a Bid Manager. She has a Patient Advocate position on the NHS England’s Policy Working Group developing an All Ages policy on HSCT (BMT) for Primary Immunodeficiencies.
Davina talked about being a patient advocate at our 2018 Family Conference.
Ning He, Trustee
Ning's son, Johnathan, was diagnosed with X-linked CGD in 2006 and had a successful bone marrow transplant in 2013. His family received a lot of information and support from the CGD Society over the years. Ning became a trustee in 2015. He currently works as an accountant.
Jackie Irvine, Trustee
Jackie’s son was born with autosomal recessive CGD and had a successful bone marrow transplant in 2011 at the age of 17. Jackie joined the charity as a trustee and lay member of the research advisory panel in 2015. She currently works in her family’s business.
Andrew Orchard, Trustee
Andrew established the first UK CGD support group in 1986 and is a founder member of the charity and a lay panel member on the research advisory panel. He has a son affected by X-linked CGD and has a nephew who had a successful bone marrow transplant in 2002. Andrew is an IT consultant and data analyst.
David Hannard, Trustee
Dave’s son was born in 2002 with X-linked CGD, but was not diagnosed until the age of 5. He had a successful Bone Marrow Transplant in 2011. Dave became a trustee in October 2019 and is currently a serving officer in the Royal Air Force.
Chikai Lai, Trustee
Chikai currently holds a director position at a pharmaceutical company. Through his work, he became aware of patient advocacy group community and its critical role in ensuring patient needs are served. He became a trustee in October 2019.
Jayne Nicol, Trustee
Jayne is a registered nurse and solicitor specialising in medical law. She was an in-house solicitor for several London teaching hospitals before spending 10 years living and working in the developing world in the charitable and medical sectors. She has a special interest in palliative care and life limiting conditions and currently works as a hospice nurse. She became a trustee in January 2020.
If you would like to find out about becoming a trustee of the CGD Society, please email us.
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