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#CGDSOCIETY

Our Team

In order to keep its overheads to a minimum, the CGD Society does not employ any staff directly. Instead it collaborates with Genetic Disorders UK to ensure that the charity is run professionally and at a low cost base.

Claire Jeffries, Charity Coordinator

Claire has personal family experience of CGD and so has a good understanding of what life is like living with the condition. As Charity Coordinator Claire oversees the day-to-day management of the charity and is the main point of contact for our members.

Claire also raises awareness of the charity and the services and support it provides and promotes fundraising events and activities to CGD Society members.

 

Helen Braggins, CGD Society Clinical Nurse Specialist

Helen is a Registered Sick Children’s Nurse and a Registered General Nurse, and works full-time as our CGD Clinical Nurse Specialist based at Great Ormond Street Hospital for Children (GOSH) in London.

She has extensive nursing experience in haematology and oncology, child protection, care of children with complex needs, specialist adolescent care and transition to adult services. Helen worked previously at University College Hospital and at St Mary’s NHS Trust where she coordinated a multi-disciplinary nursing team. Helen provides telephone and email support for those affected by CGD throughout the UK. Helen also provides on-site support for CGD patients under the care of GOSH.

Her work includes coordination of clinics for CGD, working with patients undergoing transplant and giving intravenous home therapy. She also offers pre-natal genetic advice and ante-natal support for X-linked CGD female carriers.

 

Dr Susan Walsh, Technical Director

Susan is the Technical Director at the CGD Society where she has worked since 2002.  She has a degree in biochemistry and a PhD. She is a trustee of Genetic Alliance UK and served as a member of the Executive Council of the Association of Medical Research Charities from 2009 – 2015. Susan graduated as a EUPATI Fellow in 2017. Susan works one day per week for the CGD Society developing information for the patients, their families and the medical community.  Susan is a member of the Specialised Services Clinical Reference Group for Specialised Immunology and Allergy Services.

 

More information

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Our website contains a wealth of information to help and support you. If you are not able to find the answer to a specific question, feel free to contact us using the form at the bottom of the page or by emailing or calling us.  We are here to help.