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  • Home/Our support services/Cost of living resources

    Cost of living resources

  • General

     ‘Help for Households’ – resources on how to get support with energy bills, household costs, childcare costs, and what discounts and offers are available.

    Warm Home Discount Scheme – the scheme will reopen again in November 2022. This may offer some people on benefits assistance or with low incomes towards electrical bills.

    Getting help from your supplier for customer in debt – support with debt repayment schemes.

    Help paying bills using your benefits – paying debts for energy bills out of benefits payments.

  • Charitable Trusts

    Some energy companies have set up Charitable Trusts which customers can apply to for charitable assistance if they are finding it challenging to meet energy costs.

    If the patient’s energy supplier doesn’t have a Trust (not every supplier does) then they can apply to British Gas Energy Trust for assistance, as their charitable scheme isn’t restricted to British Gas customers.

    Most charities will expect that customers apply to a debt/money advice organisation for assistance before approaching them. Families/patients can find a debt advisor here. There may be other

    charities who could assist with energy costs, by providing grants (money which doesn’t need to be paid back.

  • Citizens Advice

    Useful information on their website such as getting grants, better deals and changing supplier, in addition to a consumer specialist helpline.

  • Oxygen

    If patients have an oxygen concentrator, they can get a rebate for the electricity the concentrator uses from the company that supplies their concentrator. They can contact the company that supplies their concentrator to ask for this.

  • Lobbying

    In terms of enquiries about contacting MPs/Lobbying, aside from constituent representative MPs,

    there may be MPs with a particular interest in disability/energy bills/fuel poverty.

    Attached some All Party Parliamentary Groups which may have a particular interest in this type of

    case as PDFs (includes lead MPs who are members of the APPG):

    • Disability APPG
    • Respiratory Health APPG
    • Energy Costs APPG
    • Fuel Poverty APPG

    Contact Campaign – opportunity for families and patients to take part in the Cost of Living Inquiry.

  • Turn2Us

    Families can search for grants and schemes they may be able to apply to here. (Turn2Us)

  • Benefits check

    It is recommended that families get a benefits check from their local benefits advice service to check whether they are receiving all of the financial support that they are entitled to, as an increase in income may help the family to meet ongoing costs.

    They can find a local benefits advisor by using this tool.

  • Energy efficient upgrades

    The family may also be able to access energy efficiency support, to access energy efficient upgrades to their home.

  • Disability Energy Support

    Scope

    The charity Scope offer disabled people and their families advice regarding energy support. Patients/families can complete this form to apply for Energy Support to get an appointment.

    If they can’t wait for an appointment, they can email Disability.EnergySupport@Scope.org.uk.

    LEAP

    LEAP offer similar support (to broader groups, not just people with disabilities).

    Contact

    Charity for families with disabled children: help with household bills Cost of living support and advice.

  • Government Comms

    The Government has produced a communication assets folder designed for sharing information about Cost of Living support on social media channels. a guide to these is available here.

    14 October 2022 – This information was gathered by Emma Lear (Welfare Officer, LTV Central Team, London), Geraldine Munn-Mace (Lead Nurse, North Thames Paediatric Network) and Elaine O’Brien (LTV Lead Nurse, North West ODN). Information was correct at the time.

  • WaterSure scheme – help with paying water bills

    WaterSure is a scheme which helps some people with their water bills. To apply for the scheme, you must be on benefits and need to use a lot of water either for medical reasons or because your household has a certain number of school-age children. You also need to be on a water meter or be waiting to have one installed.

    Find out more about how to apply here

More Information

Our website contains a wealth of information to help and support you. If you are not able to find the answer to a specific question, feel free to contact us by emailing or calling us. We are here to help.

Help improve the lives of individuals and families affected by CGD

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Contact Us

hello@cgdsociety.org0800 987 8988
PO Box 454, Dartford DA1 9PE

© 2026 The Chronic Granulomatous Disorder Society is a charitable company limited by guarantee and registered in England (registered charity number 1143049 and registered company number 07607593).

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IMPORTANT NOTE: The information contained on this website is intended only as a guideline, not as a substitute for medical advice. Always consult your doctor if you or your child has any CGD symptoms or concerns.

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