Our Team
In order to keep its overheads to a minimum, the CGD Society does not employ any staff directly. Instead it collaborates with Genetic Disorders UK to ensure that the charity is run professionally and at a low cost base.
Claire Liddle (Jeffries), Executive Director
Claire has personal family experience of CGD and so has a good understanding of what life is like living with the condition. As Executive Director, Claire plays a strategic role in achieving our charities objectives agreed by our board of trustees. Claire is our only full time member of staff.
Claire started working with the charity in January 2018 as our Charity Coordinator and has successfully taken the charity forward in a new positive direction. Claire is the first point of contact for our members and continues to provide advice and support to many families and individuals living with CGD.
Helen Braggins, CGD Society Clinical Nurse Specialist
Helen is a Registered Sick Children’s Nurse and a Registered General Nurse, and works full-time as our CGD Clinical Nurse Specialist based at Great Ormond Street Hospital for Children (GOSH) in London.
She has extensive nursing experience in haematology and oncology, child protection, care of children with complex needs, specialist adolescent care and transition to adult services. Helen worked previously at University College Hospital and at St Mary’s NHS Trust where she coordinated a multi-disciplinary nursing team. Helen provides telephone and email support for those affected by CGD throughout the UK. Helen also provides on-site support for CGD patients under the care of GOSH.
Her work includes coordination of clinics for CGD, working with patients undergoing transplant and giving intravenous home therapy. She also offers pre-natal genetic advice and ante-natal support for X-linked CGD female carriers.
Catherine Bean, Fundraising and Marketing Officer
Catherine recently joined CGD Society as the Fundraising and Marketing Officer, bringing her passion for advocacy and experience in nonprofit development to the role. In this position, Catherine is responsible for driving fundraising initiatives, enhancing public awareness, and developing marketing strategies to support the charity's mission of improving the lives of individuals and families affected by CGD.
With a strong background in charitable work, Catherine has previously worked in various roles that combine community engagement, donor relations, and event planning. She is excited to apply these skills in this role to support those affected by CGD as much as possible.
More information
Read more about our services
Our website contains a wealth of information to help and support you. If you are not able to find the answer to a specific question, feel free to contact us using the form at the bottom of the page or by emailing or calling us. We are here to help.