Become a member



The CGD Society can only support its members by raising funds. We are fortunate to own the Jeans for Genes® and Genetic Disorders UK® trademarks and they give us the majority of our income, but we could do so much more if we had the money.

You can help us by running an event of any sort - whatever you want to do. Read some of our fundraisers' stories for ideas, organise a JeansforGenes Day event in September or jump out of a plane like Anthony Hutchings! Contact us for more inspiration.

We are grateful for any donation however large or small and all the donations the CGD Society receive will help those who need support with CGD and will make a huge difference to their lives.

Fundraising tools & pack

To help support your event, we have made available a number of resources for download or contact us for more information.


Jeans for Genes Day

Jeans for Genes is the main source of income for the CGD Society. The CGD Society receives a fee for the use of the Jeans for Genes trademarks. Support the CGD Society by supporting Jeans for Genes.


COVID has hit the charitable world pretty hard this year.

Traditional fundraising events have taken an online form, to ensure that charities can continued to be supported in these difficult times and here’s a few ways you can get involved with fundraising for the services – like Helen – provided by The CGD Society.


Your Fundraising Stories

We are fortunate to have many wonderful supporters who have taken on challenges to raise funds for our vital work. Take a look at some of their inspiring efforts.



Raise donations for the CGD Society when you shop online.


Remembering those we love and miss

Burning candles gently glowing in the dark