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Your Fundraising Stories

Inspiring supporter stories

We are fortunate to have many wonderful supporters who have taken on challenges to raise funds for our vital work. Take a look at some of their inspiring efforts below.

If you have a fundraising effort you would like to share, please contact us and we will be delighted to highlight your efforts here and on our social media pages.


Alfie Luxton

Alfie Luxton is 14 years old and in preparation for his bone marrow transplant, he and his brother, Sam, chose to fundraise for the CGD Society by shaving their hair off. We are delighted that at a time when he was going through so much, Alfie chose to help support others affected by CGD. To date he has raised £3,000!

Watch his inspiring fundraising video:

Having a ball

Angela Stockwell and Denise Tyler at Annual Charity Events have hosted two amazing charity balls in aid of the CGD Society. Together, these two glamorous events have raised an astounding £7,000! With a wonderful range of raffle prizes courtesy of Angel Cake Interiors of Upminster Essex and plenty of entertainment, all guests had a fantastic time whilst raising valuable funds for the CGD Society. Thank you so much to everyone involved.

Angela Stockwell and Denise Tyler have raised £7,000 for the CGD Society

Simon's story - A close shave

‘When my son Sam was having a bone marrow transplant, I spent a lot of time living in Great Ormond Street Hospital. Shaving wasn’t a priority while I was there, so I grew a beard. My work colleagues hated it. Apparently I was known as ‘House’ after Hugh Laurie’s character in the American TV show.

My close colleague Herjinder organised the sponsored ‘shave off’ because everyone knew what Sam had been going through and wanted to give to the CGD Society who’ve supported us over many years.

I went through six safety razor blades taking it off during my lunch break! I think we raised over £3,000 including gift aid.

I felt a little awkward that people had been so generous and all I had done was shave off a beard. It wasn’t like I’d climbed Everest. But my beard did represent four months of living in hospital rooms – and I had grown rather attached to it!’

Simon Stockwell shaved off his beard to raise money for the CGD Society

David Kitt

In May last year and in blistering heat, David Kitt ran 26 miles in four hours 44 minutes to raise over £3,000 for families affected by CGD.  David ran the Edinburgh marathon with his brother-in-law Jonathan Hutchings and friend Paul Reynolds in aid of the CGD Society and to support his son Daniel who has the genetic condition.

Tireless David has since gone on to run the British 10K in central London in July 2012 to raise an extra £2,000 to support our work. In 2013, David also very bravely took on a swimathon in aid of the CGD Society at Chichester Lions Club in May. Joined by his team members, dubbed ‘Kittman’s Splashers’, David swam as many lengths as he could, in relay, in only 55 minutes.


Anthony Hutching's skydive

A huge thank you to Anthony Hutchings who raised a massive £300 for the Society by completing a sky dive. Anthony and his nephew, Aydin, both have CGD and Anthony wanted to raise funds to help the charity support patients undergoing a bone marrow transplant.

Thank you from all of us at the CGD Society.


More information

Our website contains a wealth of information to help and support you. If you are not able to find the answer to a specific question, feel free to contact us using the form at the bottom of the page or by emailing or calling us.  We are here to help.