Become a member


Join our board of trustees and make a difference

We are recruiting up to five volunteer trustees to join the Board of Chronic Granulomatous Disorder Society (CGD Society), now in its 30th year.

The CGD society is a small but ambitious, family led organisation with international reach. Whilst dedicated to providing support to individuals and families affected by this rare immune deficiency, we have a long-term vision to find a cure for all.

We are working to improve support for families by expanding and diversifying funding streams, partnering with experts in our rare disease space and strengthening our governance activity. Come and join this hands-on organisation run by a friendly and active team of six Trustees whilst collaborating closely with a small staff who maintain our services and a Clinical Nurse Specialist who provides expert care and front-line support.

This is a great opportunity for new and experienced trustees looking to make a real difference and grow in the charity sector. You’d be working alongside experienced board members who will support you in the role and necessary training will be provided.

We have some specific skills gaps we would like to fill which are listed below but in doing so we are also particularly keen to diversify our Board in terms of age, race, gender and religion.

Legal (ideally with some charity context) as an essential point of reference Improving our bid writing skills to maximise grant funding

Fundraising strategy to help us diversify our income streams

Governance secretary (Company secretary) to ensure compliance

Information Technology to ensure we remain efficient and up to date

Brand development to get the most out of our assets

Digital Marketing to help our fundraising and communication

Healthcare professional to help our understanding of healthcare delivery in the UK

Trustees are volunteers (although expenses will be reimbursed) and normally work in one specialist committee, as well as prepare for and join 5 Board meetings per year.

We look forward to you joining our community and sharing our future successes together.

For more information read our recruitment pack here and visit our website

If you wish to apply, please describe your reasons and motivation in an email along with a copy of your CV to