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#CGDSOCIETY

UK Based Nursing Services

Paediatric nursing services

If you live in the UK and are the parent of a child affected by CGD and have a question regarding your child's health management, please contact our CGD Society clinical nurse specialist (CNS), Helen Braggins:

By email: helen.braggins@gosh.nhs.uk

By telephone: 020 7405 9200 ext. 5024

If you require urgent admission to hospital or any advice regarding emergency care, please use the contact details below:

From 9am to 5pm, Monday to Friday:

Please call CNS Helen Braggins on 020 7405 9200 ext. 5024 or by mobile on 07775 794 511.

Outside of these dates and hours and in emergency:

If you require urgent admission to hospital or any advice regarding emergency care, please use the contact details below:

Please call the Great Ormond Street Hospital for Children on 020 7405 9200 and ask for the immunology registrar on call.

If your child requires emergency treatment by a non-CGD specialist, you can download Chronic Granulomatous Disorder - A guide for medical professionals, written by medical professionals for medical professionals.

 

Adult nursing services

If you are an adult, living in the UK, affected by CGD and have a question regarding your health management, please contact our CGD Society clinical nurse specialist (CNS), Helen Braggins:

By email: helen.braggins@gosh.nhs.uk

By telephone: 020 7405 9200 ext. 5024

If you have a specific question for Dr David Lowe, immunology consultant at the Royal Free Hospital, please contact him directly:

By email: david.lowe7@nhs.net

By telephone: 020 7830 2141

In case of emergency

If you require urgent admission to hospital or any advice regarding emergency care, please use the contact details below:

From 9am to 5pm, Monday to Friday:

Please call CNS Helen Braggins on 020 7405 9200 ext. 5024 or by mobile on 07775 794 511.

Outside of these hours:

Please call the Royal Free Hospital on 020 7794 0500 and ask directly for Dr David Lowe, Immunology Consultant at the Royal Free Hospital.

If you require emergency treatment by a non-CGD specialist, you can download Chronic Granulomatous Disorder - A guide for medical professionals, written by medical professionals for medical professionals.

 

Services for X-linked carrier females

If you are a carrier of X-linked CGD and live in the UK, the CGD Society Clinical Nurse Specialist, Helen Braggins, will be able to refer you to appropriate healthcare professionals for your ongoing care and advice for control and treatment of any symptoms. Helen will also inform you about any on-going research studies that you may want to participate in.

If you are pregnant or planning to become pregnant, Helen can also provide full antenatal support and advice through the Great Ormond Street Hospital for Children family clinic.

Please contact Helen via:

Email: helen.braggins@gosh.nhs.uk

Telephone: 020 7405 9200 ext. 5024

 

More information

For more information, contact us.

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