Family Support Fund

The Family Support Fund covers two types of expenses that are listed below.

Expenses that can be self-referred to the charity:

Annual Prescription Pre-Payment Certificates (PPCs) for adults affected by CGD and X-linked carriers in England* between the ages of 16 and 60 who do not qualify for any other type of payment exemption. Please note these need to be renewed annually by contacting the CGD Society. You will be asked to provide a copy of a clinic letter with your diagnosis and medication list to the CGD Clinical Nurse Specialist. For further information on whether you quality for a free or reduced cost prescriptions, please refer to http://www.patient.co.uk/health/Free-or-Reduced-Cost-Prescriptions.htm

* Prescriptions are free to all in Northern Ireland, Scotland and Wales.

Expenses related to hospital admissions or any other CGD related costs. These expenses must be referred to the charity through the nursing service:

• Travel costs to hospital appointments 

• Financial support for parents to stay near their child/children when they are in hospital going through a BMT or when their child/children have been admitted to hospital for a long time. 
• Financial support for CGD affected adults who have lost some earnings while going through a BMT or have been admitted for a long hospital stay. 
• Food vouchers for families and patients while in hospital  
• Little treats for children with CGD while they are in hospital. 
• Equipment to help children continue their schoolwork while being in hospital and receiving treatment. 

If you would like to apply to the CGD Society regarding the payment of any of the above expenses, please email us at hello@cgdsociety.org and we will get back to you.

The CGD Society would like to offer support to patients and families affected by CGD who are facing financial and personal hardship. If the charity can help you and your family through a difficult period or replace essential equipment or furniture in your home, our specialist nurse can assist you with a claim.

Unfortunately, the charity is unable to deal directly with personal requests for expenses as all requests are subject to professional assessment.