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My Fears Growing up is hard – even without having a condition like CGD. You may feel that CGD affects lots of parts of your life, like your social life and your self-image. What fears are nagging away at you? School? Friends? Family? The future? In this section we look at some common worries –…

Would you like your photo to be hanging in a swanky London office? The CGD Society is working with Orchard Therapeutics, a biotech company dedicated to transforming the lives of patients with rare diseases through innovative gene therapies. You may recall that they gave us a generous grant towards our 2018 Family Conference. Voucher and…

Inheritance CGD is an inherited disorder, which means that it is passed from parents to their children. One type of CGD is ‘X-linked’ (sex-linked) and the other four are ‘autosomal recessive’. But how does this genetic inheritance work exactly?   X-linked CGD Around 65 per cent of people with CGD have X-linked CGD. Everyone with…