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Fighting Infection in CGD

Fighting Infection in CGD Infections are a major threat to the health of people affected by CGD. The CGD Society supports work that helps to develop models that mimic human CGD disease processes. We also fund research that advances the development of better treatments for bacterial and fungal infections. Since 1997 we have invested £887,208…

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Understanding Inflammation

Understanding Inflammation Inflammation that occurs due to CGD causes serious health problems, such as damage to vital organs. Greater understanding about the link between CGD and inflammation through studying the mechanisms and interactions between cells of the immune system may uncover new ways to treat severe inflammation in CGD. Over the last 20 years the…

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Enzyme Defect in CGD

Studying the Enzyme Defect in CGD Basic understanding of how components of the enzyme NADPH oxidase work together to help kill microbes is fundamental to developing new drug treatments for CGD. The CGD Society has funded over £343,000 worth of projects led by world-renowned scientists. The work has resulted in 13 publications. Here we summarise…

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Organising BMT in the UK from Abroad

Organising BMT in the UK from Abroad There are two hospitals in the UK that are designated centres of excellence and offer bone marrow transplantation for CGD. To refer a member of your family to one of these centres, you need to contact them and submit a referral request. They will need the name of…

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Claiming Personal Independence Payment

Claiming Personal Independence Payment (PIP) About PIP Personal Independence Payment (PIP) is a benefit available in the UK for people aged 16–64. It can help with some of the extra costs caused by long-term ill health or a disability. If you are older than 64, you need to claim Attendance Allowance. PIP has replaced the…

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FAQs – Your Employment Rights

FAQs – Your Employment Rights If you have CGD here are some frequently asked questions (FAQs) about your rights to time off for treatment, telling your employer about your condition, taking sick leave and requesting flexible working to accommodate your health needs. Is my condition considered a disability? If you have CGD then you will…

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