Newly Diagnosed - Parents & Carers

If you are a parent or carer whose child has just been diagnosed with CGD, this is what you need to know:

• CGD is an inherited genetic disorder
• It isn’t down to anything that you did – it is not your fault. Genetic conditions just happen and there is nothing you could have done to stop it
• Being told your child has a genetic condition can be shocking, daunting and worrying. We are here to provide you with information, help and support. You don’t have to feel like you’re facing this alone