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Alex’s Story (June 2020) Alex Creamer (32) originally from Preston in North West England was diagnosed with CGD at the age of 4 after his parents grew concerned about swelling and pain in his stomach.   Whilst this rare and life-limiting condition blighted many aspects of his childhood and adolescence, Alex talks in a largely…

Living with CGD Chronic Granulomatous Disorder (CGD) is a genetic disorder that, with care, can be managed effectively. In this section we look at the various groups of people that are affected by CGD and some of the options available in managing the condition as well as ways of potentially curing the individual using the…

  Sharing experiences of CGD brings those affected by CGD together, helping us better understand the reality of living with CGD, sharing the highs and lows, and acting as an important reminder that we are not alone in our CGD journey. Would you like to get involved and share your experience with CGD? If you do,…

Short guides in non-English languages Granulomatose septique chronique Un guide pour les professionnels de la santé Informationsbroschüre über septische Granulomatose Enfermedad granulomatosa crónica. Guía para profesionales médicos   More information See our resources in English Our website contains a wealth of information to help and support you. If you are not able to find the…

A-Z fundraising ideas for all! Would you like to fundraise for CGD Society so we can continue our services for families living with CGD? First of all – thank you!  Your support, donations and fundraising enable us to continue our vital work. We’ve got the tool for you! We have pulled together an A-Z of…

Lupus and Carriers of X-linked CGD There is increasing evidence that some carriers of X-linked CGD develop symptoms of the condition lupus. This webpage provides some information on symptoms of lupus in X-linked CGD carriers. It helps explain what lupus and lupus-like symptoms are and how they can affect X-linked CGD carriers. It also explains what to…

Contact Us Telephone and email contact details If you have a query about CGD and you cannot find the answer on our website or need help, then don’t hesitate to contact us. We will do our best to get an answer to you or to put you in touch with someone who can help. *Please…

Shannon and Wendy’s story (March 2024) Shannon and her mum, Wendy, each share their perspective on their family’s journey with CGD and bone marrow transplant (BMT) Shannon’s story:  How to live with and scold CGD in your late teens!   Having a chronic illness during your late teens is never easy. Particularly an immunodeficiency disorder,…

Our Trustees If you would like to find out about becoming a trustee of the CGD Society, please email us. Geoff Creamer, Secretary Geoff has been a Trustee for over 30 years with two periods as Chair and has seen this charity change from a small patient support group to an international resource for those affected…

The current outbreak of the Coronavirus (COVID-19) creates an uncertain time for us all, particularly if you are living with a chronic illness such as CGD. We have created, compiled and collated as much information as we can to help you navigate these unsettling times – from the latest advice to tools and resources designed…