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Michael’s story (Jan 2021)   Reluctant patient becomes advocate for CGD Society Tearing up rugby pitches and smashing the international water polo circuit might not be an obvious choice for a young man with a life-limiting condition, though for Michael Duddy (35) his childhood was remarkably untainted by a CGD diagnosis. Michael who now lives in…

Vaccines  The booster vaccination programme We advise that those with CGD and X—linked carriers who are invited to have the booster vaccine to have the vaccine. A booster dose of the coronavirus (COVID-19) vaccine helps improve the protection you have from your first 2 doses of the vaccine. It helps give you longer-term protection against…

FAQs on X-linked Carrier Issues Many X-linked CGD carriers report symptoms that are similar to a condition called lupus. Below is a list of commonly asked questions. Click on the question to see the answer. What is lupus? Lupus is an autoimmune condition caused by a fault in the body’s immune system. Normally the immune…

Types of CGD CGD is an inherited disorder, which means that it is passed from parents to their children. There are two types of CGD, called X-Linked CGD and autosomal recessive CGD. Which type a person has depends on how it has been inherited from their parents.  The different types cause some proteins in their blood cells…

Fighting Infection in CGD Infections are a major threat to the health of people affected by CGD. The CGD Society supports work that helps to develop models that mimic human CGD disease processes. We also fund research that advances the development of better treatments for bacterial and fungal infections. Since 1997 we have invested £887,208…

CGD – The Basics » CGD stands for Chronic Granulomatous Disorder. It is a life-threatening and life-limiting condition. » CGD is an inherited genetic disorder. » It used to be known as Chronic Granulomatous Disease and doctors sometimes still use this name. What is CGD? CGD is a disorder that prevents the immune system fighting…

Newly Diagnosed Affected Adults If you have just been diagnosed with CGD, welcome to the site.  This is what you need to know: » CGD is an inherited genetic disorder » It isn’t down to anything that you did – it is not your fault or anyone elses.  Genetic conditions just happen and there is…

Understanding Inflammation Inflammation that occurs due to CGD causes serious health problems, such as damage to vital organs. Greater understanding about the link between CGD and inflammation through studying the mechanisms and interactions between cells of the immune system may uncover new ways to treat severe inflammation in CGD. Over the last 20 years the…

Newly Diagnosed Children and Young People If you have just been diagnosed with CGD, this is what you need to know: » CGD is an inherited genetic disorder » It isn’t down to anything that you did – it is not your fault or that of anyone else.  Genetic conditions just happen and there is nothing…

Our Services As a charity, we benefit from the expertise, enthusiasm and goodwill of many people – CGD families, doctors, nurses, researchers, volunteers, patrons, trustees and fundraising supporters. With help from these diverse sectors, we can give on-the-ground support to CGD-affected people in a multitude of ways, including medical advice, emotional support and raising awareness…