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The Early Days by Rosemarie Rymer, former volunteer and employee What do I recall from the early days of the CGD Research Trust, now the CGD Society?     I remember: Hearing the words ‘Chronic Granulomatous Disorder’ (CGD) thirty years ago and like most people, saying ‘What’s that?’   Attending a friend’s fund-raising fork supper.…

How I joined the CGD Research Trust in 1992 – Geoff Creamer, Chair of Trustees The year when my sons were diagnosed with CGD was the year I entered this parallel universe.  Previously blissfully unaware of genetic disorders and with no family history, we were suddenly transported into a scary world of rare disease with…

Michael’s story (Jan 2021)   Reluctant patient becomes advocate for CGD Society Tearing up rugby pitches and smashing the international water polo circuit might not be an obvious choice for a young man with a life-limiting condition, though for Michael Duddy (35) his childhood was remarkably untainted by a CGD diagnosis. Michael who now lives in…