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COVID-19 research update Vaccine development   We all know how much a vaccine against COVID-19 is needed. This great article from the Wellcome Trust gives an insight into the stages involved and how the timescales of usual development are being dramatically speeded up to address the urgent need.  Thankfully, initiatives at Imperial College London and Oxford…

Clinical Trials The world of research into CGD never stays still. As you read this, there are clinical trials taking place right across the globe that will benefit CGD-affected people. Some are specific to CGD and others – especially those associated with stem cell transplantation – may involve CGD patients and those with other genetic…

Jeans for Genes What is Jeans for Genes? The Jeans for Genes campaign has a mission to change the lives of everyone across the UK living with a genetic condition. It raises awareness of the daily challenges faced by those living with a genetic condition and raises money to fund projects like ours that make…

Virtual London Marathon Calling all runners, walkers or joggers! We are looking for people to take part in this years Virtual London Marathon 2021 as part of our 30th year celebrations – could it be you? The Virgin Money London Marathon is the largest annual one-day fundraising event on the planet – participants have raised…

Looking After Your Child There are lots of ways you can help your child keep well. Helping them to stay fit will make them feel good about themselves and give them energy to avoid infection. It will also mean they are likely to get better more quickly if they do fall ill. You can help…