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Virtual London Marathon Calling all runners, walkers or joggers! We are looking for people to take part in this years Virtual London Marathon 2021 as part of our 30th year celebrations – could it be you? The Virgin Money London Marathon is the largest annual one-day fundraising event on the planet – participants have raised…

JustGiving Setup a JustGiving Page for Your Event Setting up a JustGiving page to collect sponsorship for your event is easy. Just click the link below to go to the CGD Society’s JustGiving page and follow the instructions. https://www.justgiving.com/cgdsociety   Get more tips from JustGiving Once you’ve set up your fundraising page, visit the JustGiving fundraising…

BMT for Adults with CGD Advances over the last ten years have now made it possible for doctors to consider treating adults affected by CGD by bone marrow transplantation (BMT). BMT is a specialised procedure and should be done by skilled and experienced transplant teams working in specialist centres.  The decision to proceed to BMT…

My General Wellbeing At times it may feel like CGD dictates your health and well-being but there are things you can do to help keep yourself well. Keeping yourself as fit and well as you can will help you feel good about yourself, give you energy, avoid infection and get better more quickly if you…

My Eating The best diet for anyone (whether you’ve got CGD or not) is a healthy diet. That means including lots of different types of food in our diets, including five portions of fruit and vegetables each day! This doesn’t mean that burgers and pizzas are out– just remember to have some ‘healthy food’ too!…

Published Research for X-linked CGD Carriers Research into the possible health complications of being a carrier of X-linked CGD is still in its infancy. The CGD Society is working hard to raise awareness of health problems experienced by people who are carriers of X-linked CGD and to encourage more research in this area. This section…

Having a Flu Vaccine The flu is unpleasant for anyone but if you have CGD, it can lead to further problems. People with the condition can fight the flu virus normally. But having flu may lead to nasty bacterial pneumonia and this can be more severe for people who have CGD. If you have CGD,…

Sign up to easyfundraising Did you know that whenever you buy anything online – from your weekly shop to your annual holiday – you could be raising free donations for the CGD Society with easyfundraising? There are over 7,000 shops and sites on board ready to make a donation – including eBay, Argos, John Lewis,…

Treatment of liver abscesses in CGD Research published in the journal Clinical Infectious Diseases has indicated that liver abscesses are best managed with corticosteroids in addition to antibiotics, rather than by invasive techniques. Liver abscesses are a serious complication of CGD and are treated using antibiotics together with either high-dose corticosteroids or invasive surgery procedures.…

Quality of life issues in X-linked CGD carriers Results of the first study into the quality of life of X-linked CGD carriers (XL-carriers) have been published in the Journal of Clinical Immunology. The results show that high levels of anxiety and significantly reduced quality of life are associated with this carrier status. Professor Andrew Gennery,…