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One Lottery : buy tickets and support our cause! Who is One Lottery?   One Lottery has been established to help good causes throughout the UK to set up a fundraising lottery. Their mission is to help small charities like ours raise funds online, all year round without any fees or admin. One Lottery is managed by…

Please read these terms and conditions carefully.  They contain important information on your rights and obligations. For the purposes of these terms and conditions, ‘us’ ‘we’ and ‘our’ refer to Chronic Granulomatous Disorder Society.  “Chronic Granulomatous Disorder Society” means the registered charity “Chronic Granulomatous Disorder Society”. 1.     Introduction 1.1  This website is intended to provide information…

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Virtual fundraising events COVID has hit the charitable world pretty hard this year.  Studies from the Institute of Fundraising show that 92% of all charities reported a fall in income during lockdown and 91% of all charities have had to cancel events. On a small charity scale like ours, only one in five small charities…

CGD Society funding supported research on a new tool to speed up diagnosis of p47phox CGD Researchers at the University Children’s Hospital Zurich, Switzerland have developed a promising new low cost and fast method of diagnosing p47phox CGD.  The work, published in the journal Molecular Therapy: Methods and Clinical Development, was in part funded with…

UK Adult BMT Success for CGD Patients emphasises need for transplants to be done in highly specialised centres Data expected to change the clinical management of adult PID patients was published earlier this year in the journal Blood.  The publication reports on the largest series in the world to date of adult primary immunodeficiency patients…

You are here > Search > AI-102模擬問題集 📻 AI-102関連受験参考書 🔘 AI-102関連受験参考書 🥖 【 www.goshiken.com 】の無料ダウンロード⇛ AI-102… > The UK and European CGD Registries In 1999 there was no central source of information in the UK about the CGD population, the problems patients face or the success of different treatments. But the CGD Society helped to…

Claiming Diasability Living Allowance for Your Child About DLA You might not consider your child ‘disabled’ but if they have a long-term illness such as CGD they may be eligible. Also don’t feel stigmatised by claiming Disability Living Allowance (DLA), if your child qualifies you are entitled to it. DLA covers children up to the…

Lung Problems Looking after your lungs is important for everyone but especially for people with CGD. People with CGD are more prone to infection and inflammation than most other people, including lung infections. Reducing the likelihood of infection and inflammation in general is crucial for people affected by CGD. And this is especially true for…