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Gene Therapy Grants The main objective of the CGD Society and its predecessor, the CGD Research Trust, has been to help develop a cure for CGD using gene therapy. We have invested over £2.13 million in pursuit of this goal. Funding, which started in 1998 with proof of concept studies, has resulted in 40 publications.…

Sepsis Sepsis happens when the body’s immune system goes into overdrive in response to an infection. It is often referred to as septicaemia or blood poisoning. Everybody is potentially at risk of developing sepsis from minor infections, such as a bacterial throat infection. However, people with CGD and other causes of a weakened immune system…

Studying the Enzyme Defect in CGD Basic understanding of how components of the enzyme NADPH oxidase work together to help kill microbes is fundamental to developing new drug treatments for CGD. The CGD Society has funded over £343,000 worth of projects led by world-renowned scientists. The work has resulted in 13 publications. Here we summarise…

About CGD Living with CGD For Medical Professionals Latest News OUR SERVICES The CGD Society can support you in several ways.     READ MORE SUPPORT US There are many ways you can support us and make a difference to the CGD community.     READ MORE Become a trustee Make a difference and join…

COVID-19 : Taking care of your mental & emotional well-being We know that living with and managing CGD or being an X-linked carrier can have an impact on your wellbeing and mental health. Many people will need emotional support or professional psychological counselling at some stage. This is especially true in regard to the current…

Virtual fundraising events COVID has hit the charitable world pretty hard this year.  Studies from the Institute of Fundraising show that 92% of all charities reported a fall in income during lockdown and 91% of all charities have had to cancel events. On a small charity scale like ours, only one in five small charities…

Claiming Diasability Living Allowance for Your Child About DLA You might not consider your child ‘disabled’ but if they have a long-term illness such as CGD they may be eligible. Also don’t feel stigmatised by claiming Disability Living Allowance (DLA), if your child qualifies you are entitled to it. DLA covers children up to the…

FAQs – Transition from Children to Adult Services Moving from children to adult care services is called “transition” Here are some frequently asked questions concerning transition from paediatric care to adult services. When do I have to move from seeing a paediatrician to adult care? This usually happens when you’re between 16 and 18 years…

Noah’s Story (January 2012) Noah, 7, had X-linked CGD and a BMT via an unrelated donor from the US on 27 January 2012 at Great Ormond Street Hospital. He spent 62 days in hospital and now has 100% engraftment, meaning all the donor’s stem cells have settled in his bone marrow and are producing healthy…

Isaac’s Story (February 2014) Isaac’s mother, Micheala, had known she was a carrier of chronic granulomatous disorder (CGD) and that any son she had would have a 50/50 chance of inheriting it from her. Isaac tested positive at just one day old and started antibiotic treatment three days after his birth. At seven months old,…